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Fragile X Syndrome: Research
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A Medication Guide for Fragile X Syndrome by Michael Tranfaglia, MD is a publication describing target symptoms common in FXS and the types of medications frequently used to treat them. It is available from the FRAXA Research Foundation.
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Investigators at Baylor College of Medicine work closely with researchers at Emory University School of Medicine in Atlanta, GA, in collaborative projects to characterize and investigate mutations causing Fragile X syndrome. Such collaboration makes more efficient use of resources.
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The National Fragile X Foundation (NFXF) was founded in 1984. Among its many activities, it provides support services and education, promotes awareness activities, organizes international conferences, funds scientific research, and leads a legislative advocacy effort in Washington, D.C.
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According to Nobel Laureate Dr. James Watson, who discovered the structure of DNA 50 years ago, "FRAXA has been hugely effective in raising money and inducing Congress to support Fragile X research. Experience shows that dedicated, resourceful, and, above all, motivated organizations like FRAXA sometimes do hold the key to cracking these diseases against the long odds. To those who take the biggest gambles -- financial and scientific -- sometimes, with luck, come the greatest rewards."
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Working closely with Scripps Florida biomedical research institute, the CFXF sponsors an annual Fragile X Research Conference in Palm Beach, among many other activities. Those efforts are expected to continue and even gain momentum with the merger, given the NFXF's own research funding and its activities through nearly 50 state chapters. The biennial NFXF International Conference should ... serve as a powerful complement to the CFXF Research Conference, increasing both fundraising resources and scientific collaboration in the effort to find better treatments and an eventual cure for Fragile X.
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