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Cystic Fibrosis: Cystic Fibrosis Foundation
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CF Services, Inc. - a subsidiary of the Cystic Fibrosis Foundation is a national pharmacy that specializes in providing medications to individuals with cystic fibrosis (CF). Since 1988, CF Services has ensured the availability of CF medications to the CF community at the lowest possible cost. www.cfservicespharmacy.com
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The Cystic Fibrosis Foundation is the leading organization devoted to curing and controlling cystic fibrosis. Headquartered in Bethesda, Md., the Foundation funds CF research and CF drug discovery and development, has 80 chapter and branch offices throughout the country, and supports and accredits a nationwide network of 115 CF care centers, which provide vital treatments and other CF resources to patients and families. For more information, visit http://www.cff.org.
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According to the Cystic Fibrosis Foundation, about 30,000 Americans, 20,000 Europeans, and 3000 Canadians have CF. In the United States, about 12 million people are carriers, and every year 2500 babies are born with CF.
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The Cystic Fibrosis Foundation depends upon public support to carry out its life-saving programs. The generosity of donors has enabled scientists to identify the gene that causes CF, to correct defective CF cells in laboratory dishes, and much more. Based on these successes, Foundation-supported researchers are now conducting gene therapy studies involving individuals with CF, using several unique gene delivery methods. This new gene transfer therapy technology may ultimately lead to a cure. For more information on CF gene therapy, see the fact sheet entitled, Gene Therapy and CF.
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The Cystic Fibrosis Foundation ... compiles lifestyle information about American adults with CF. In 2004, the foundation reported that 91% had graduated high school and 54% had at least some college education. Employment data revealed 12.6% of adults were disabled and 9.9% were unemployed. Marital information showed that 59% of adults were single and 36% were married or living with a partner. In 2004, 191 American women with CF were pregnant.
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The Cystic Fibrosis Foundation (CFF) was established in 1955 to assure the development of the means to cure and control cystic fibrosis (CF) and to improve the quality of life for those with the disease. The Foundation has more than 80 chapters and branch offices nationwide and funds and accredits 115 CF care centers across the country, including 94 adult care programs, which provide patients and families with vital treatment and other CF resources. In addition, 54 affiliate programs provide multi-disciplinary care for CF with Foundation support. Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide).
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Cystic Fibrosis Foundation