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Chronic Illness: Families
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When you have a child with a chronic illness, especially when it's very serious, the first response may be to become rigid and strict with rules and expectations. However, research has shown that family life is better when there is flexibility in the rules and expectations (Patterson, 1991, p. 495). This flexibility is particularly important at certain stages of life, specifically adolescence.
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A family is best able to cope with the needs of a chronic illness when the needs of that illness are integrated into a regular family routine. This routine includes the delegation of responsibilities and an organized schedule of appointments. It is important to remember the need of flexibility in your routine to ease the stress that accompanies too many obligations.
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Nearly 100 million Americans have chronic illnesses or disabilities such as heart disease, diabetes, arthritis, multiple sclerosis, Parkinson’s disease, birth defects, and mental illnesses. Individuals with chronic conditions may face losses of mobility, control, livelihood, and self-image and become fearful of pain, dependency and abandonment. They grieve for the life that used to be. Their spouses, children and other loved ones will ... grieve for the life that used to be. The diagnosis of a chronic illness such as Alzheimer’s disease in a loved one may bring shock, anger, denial, or fear to family members and friends. The effects of chronic illness on the psychological and social health of both the individual and the family are considerable.
The chronic illness of a family member is a situation where all family members are asked to adapt. This can put a lot of strain on a family. The following are ideas to help your family cope and even become stronger in the face of a chronic illness.
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When there is a child with a chronic illness in your family, your other youngsters may experience negative repercussions. Here are some warning signs indicating that the siblings of your ill child may need some extra attention.
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At any time during the life of a chronic illness, family members or the family as a whole may need support from a trained professional, such as a Marriage and Family Therapist (MFT). Signs to watch for include:
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