LYCOS RETRIEVER 
Alps: Families
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Relatives who do not have ALPS: Brothers and sisters or other relatives who don't have ALPS are still affected by the condition. Some worry that their brother or sister will die. Some think they will develop ALPS because they look or act like their brother or sister. Some children struggle with how much of their parents' time is spent with their sick brother or sister. Relatives who have a Fas mutation but do not have ALPS may feel guilty that they are not sick. It is important for families to talk openly about ALPS so that any misconceptions can be explained and feelings can be expressed.
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In 1995, this newly identified condition was named - Autoimmune Lymphproliferative Syndrome or ALPS. By August 1999, 58 individuals from 35 families had been diagnosed with ALPS. These families come from all over the country and are of many different racial backgrounds.
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The ALPS office serves as a drop-in centre with a relaxing lounge space, small resource library, and computer lab with scanner and printer. ALPS has free weekly coffee sessions and networking opportunities where students can meet and share their experiences with other like-minded individuals. ALPS ... hosts regular social activitiesfor its members and their families.
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The positive side: Many families say that ALPS has brought them closer together. Family members learn that they can rely on each other for support. Children learn from their parents' open and honest communication, and the experience teaches them how to solve problems.
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