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Albinism: People
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The occurrence of all forms of Albinism is approximately 1 in 10,000 people in the United States. Albinism is more common in some isolated communities, such as the Amish or Mennonite groups in the United States. Albinism affects males and females equally except the X-linked forms of this disorder that affect only males.
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Albinism is a group of genetic disorders in which the affected individual has reduced or absent pigmentation. It is thought that about 1 in 20,000 people are affected with albinism. All ethnic groups and both genders appear to be affected by albinism which presents in the neonatal period.
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Albinism does not make a person completely blind. Although some people with albinism are "legally blind," that doesn't mean they have lost their vision completely. They can still read and study — they just may need larger print or magnifiers to help them.
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The National Organization for Albinism and Hypopigmentation (NOAH) was founded in 1982 for the benefit of individuals and families with albinism and hypopigmentation. NOAH provides information and support, promotes public and professional education, and encourages research and research funding that will lead to improved diagnosis and treatment. The Organization has local chapters in some areas, and contact people in most states.. NOAH is a nonprofit group, which receives its funding through membership fees, donations, and grants. NOAH conducts national and regional conferences.
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Albinism is present at birth, although some types of the disorder may not be easily identified in infants. Although there's no cure for albinism, people with the disorder can take steps to improve vision and avoid too much sun exposure. Albinism doesn't limit intellectual development or educational potential. Unfortunately, people with albinism often feel socially isolated and experience ridicule or discrimination.
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